Can Morquio's kids hear very well?

It is really irritating when I talk to Adnin and Aqilah and they never seem to respond. I sometimes need to yell at them to get their attention. Come to think of it, it's not their fault. Some degree of deafness is common in individuals suffering from MPS IVA. It may be conductive deafness, nerve deafness or both (mixed deafness) and can be made worse by frequent ear infections. It is important that individuals with MPS IVA have their hearing checked regularly and for problems to be treated early to improve or maintain the ability to communicate and learn.

Adnin & Aqilah's hearing have been checked twice already; first time here in Nottingham and second time in Birmingham. The result of the test confirmed that they are struggling to hear things. They have another appointment with the ENT (Ear, Nose & Throat) this July 22, 2008. Adnin suffered from ear infections and it gets better with the last ear drops that she got. With the school coming to an end, and her weekly swimming activity stops for a while, I hope she wouldn't get the ear infection again...

When people can't hear very well, they tend to speak loudly. My house is sooo havoc like "pasar malam" when everyone is 'live n kicking'. I hope our next door neighbours won't complain...