Adnin's hearing aid

Adnin is really thankful to get her hearing back. Yesterday we went to the hearing centre to fix her first hearing aid for her left ear. Further tests were being done before and after the hearing aid was fixed. She looks comfortable wearing it. This is how it looks like...

How does the hearing aid work? Well, behind her ear, there is a mic that picks up the sound and the sound goes through the tube and goes into her ear. At times she would get the hissing sound especially when somebody is using handphone around. There is a volume control button; if she wants to be nasty and doesn't like to hear what you are saying, she can simply turn the volume really down! I hope she wouldn't do it to me.

The hearing aid uses a little battery which lasts around 10 days. Luckily we can get a free supply of batteries from the GP or from the hearing centre.

At night it has to be taken out as well as taking her shower. If it gets wet, there are gadgets supplied to dry up the hearing aid.

One problem is settled. I'm still worried about her knocked knees as yesterday, on our way back from the hearing centre, I have to carry her to the bus stop as she was in pain walking quite a distance. (Luckily Sanya was kind enough to send us there and we did not have to take the bus to get there). The other day, during her class' excursion to Wollaton Park, the other kids had to walk and Adnin get to ride in her teacher's car. While walking at the park, she had to be carried by her teacher as she could not stand the pain anymore. Nonetheless, she enjoyed it and kept on telling us about it over and over again...

Adnin definitely needs an operation...

Following the appointment this afternoon, Adnin definitely needs an operation to put a plate on the inner side so as to prevent the feet from dilating further. The doctor needs to write to Birm's Children Hospital to find out when the neck operation will take place before he can set an operation for Adnin's knees.

This is a recent photo of Adnin's feet.

Aqilah will be seen at Queen's during the next Dysplasia clinic. Her feet tend to dilate like Adnin and I hope they will be stapled soon so that the feet won't be like Adnin's. Sounds scary isn't it - to staple... Well, that is the term they used to describe the procedure...

There are generous people out there...

Adli's friend, Faisal and his mom (Pakistani family) came to visit us yesterday evening with more gifts for the kids. This time, colouring sets for Adli, Adnin & Aqilah; pyjama suits for the girls as well as t-shirts and jeans. Faisal's sisters are Adnin and Aqilah's classmates. Just few days after Raya, she handed them two full bags of Primark clothings which I certainly cannot afford to buy!

There are generous people out there...she even said if I ever need anything, don't hesitate to let her know...I don't think she is aware of the kids' condition. If she knows, Adnin & Aqilah would be really pampered. Their big sisters are already jealous of them for getting so many things :-) Sorry Sis Aina & Aini if you happen to read this...

Another appointment next week...

Adnin had an appointment at Queen's Medical Centre this afternoon. It seems that we have to go there again next week as she needs to be x-rayed thoroughly before any decision can be made.

So far, she is progressing well; she managed to fast for the full month during last Ramadhan. Her father tip her 20p for every day she was fasting. Her appetite was also good during Ramadhan as she eat much more during breaking off fast and during early meal before fasting starts.