- Understanding aspects of Morquio
- Clinical management of Morquio disease
- Living with Morquio disease
- Research and future treatments
There will be life testimonials or rather personal experiences of children affected by Morquio who have done treatments like cervical fusion, knocked knees stapled, surgical intervention of the lower spine and so on. I'm actually looking forward to the information on the Enzyme Replacement Therapy that they are coming out for the disease.
The conference is of course for the parents; the children will have their own social programme. There will be Gala Dinner for professional, familes and volunteers. Of course there will be halal food...