How do they look like?

Here are their pictures taken at Mundy Park, Derby recently. Their features are about the same that people always thought that they are twins. I'm keeping Adnin's hair short so that they don't look that much alike.


Some common features of Morquio children - the neck is very short, the bridge of the nose flattened. The hair is not affected. Clouding of the cornea caused by storage of mucopolysaccharides is seen in children and adults with MPS IVA. Adnin and Aqilah had their eyes checked at Queen's Medical Centre last March and their visions are alright. I've been feeding they carrots - hopefully they won't turn into rabbits!

As for intellectual ability, there is no storage of mucopolysaccharides in the brain of individuals with MPS IVA and therefore intelligence in not normally affected. They are excellent in their studies and always in a good book - their names are always announced in the school assembly for being good...