Since the kids' story appear in the newspapers, more and more awareness is on the way. Last Sunday, we were at Grand Millenium, Jalan Bukit Bintang for a soft launch of our association - Malaysia Lysosomal Diseases Association (www.mymlda.com). Adnin and Aqilah were invited on stage to share their experience being Morquio kids. We had special visitors from Taiwan MPS society - among them, two sisters who are also Morquio kids. They presented some flower necklace to the VIPs, and Adnin and Aqilah, representing the MPS kids here. It's really touching to see the adults having had to kneal down really low for the Morquio kids to be able to put the flower necklace on them.
Adnin and Aqilah on stage. They are really adorable...
KF facilitation the session,
and me playing supporting role :-)
The VIPs with the Morquio kids
The poster
All of us togetherThe best part of it, after Dato' Yeow officiate our association, the video http://www.youtube.com/watch?v=yECd3tl2DQY was shown. It was really touching indeed and tears rolling down our eyes. Our hardwork in establishing this association has materialized! Congratulations to all!
Adnin and Aqilah on stage. They are really adorable...
KF facilitation the session, and me playing supporting role :-)
The VIPs with the Morquio kids
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