Tuesday 9 December 2008

Adnin is due for knee operation in January...

We had an appointment with the doctor at Queen's yesterday and Adnin's knee operation will be held on 27 January, 2009. The anesthetist met Adnin yesterday; asked her if she could move her head to the sides, up and down, open her jaw wide, and stick out her tongue. Adnin managed to do all these without any pain and it proved that her neck is stable and she is able to undergo the operation. They really have to be careful with Morquio kids on anesthetics as their windpipes could be small which could cause complications during operation.

The knee operation that Adnin will undergo, is called an eight-plate procedure. What is an eight-plate procedure? It's actually a small plate in the shape "8" that the doctor will screw it to the bone to depress the growth plate on the inner side of the knees (as Adnin is having knocked knees). It is hoped that by depressing the growth plate on one side, the other side will grow and the knees with get straight by themselves. After the eight-plate is implanted, she would need to be assessed every 3-months to see the improvement - her height hopefully will improve. Since she is due to receive the clinical test for the ERT, hopefully the 8-plate procedure would work and Adnin can have her straight legs! Usually it will take 6 - 18 months to see the effect. If it works, the eight-plate can definitely be taken out.

I read through on this 8-plate procedure over the internet, and it was a success. Just pray that it would work on Adnin.

The kids have appointments on the 29 Jan, 2009, to see whether they need wheelchairs. They will instead have the appointments on the 26 Jan, 2009 as Adnin might need it after the operation before she can fully walk again...

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